May 19, 2015
Tagged: Center for Health Innovation, College of Nursing and Public Health, Erudition

Better Medicine for All

News, Publication

Ensuring that faith leaders are knowledgeable about clinical research participation

by Bonnie Eissner

Elizabeth Cohn

Elizabeth Cohn, Ph.D.

A study published in Cancer in 2014 revealed some troubling statistics about clinical trials funded by the National Institutes of Health. According to the study by researchers at the University of California, Davis, minorities are significantly underrepresented in such research. In fact, only two percent of the clinical trials sponsored by the NIH’s National Cancer Institute focus on any minority population. The implications of this imbalance are significant, and researchers, such as Elizabeth Cohn, Ph.D., the director of Adelphi’s Center for Health Innovation, have been looking for ways to diversify clinical trial participation.

Dr. Cohn is nearing the end of an in-depth study on minority representation in clinical trials and genomic research. Having found disparities, she and her team are now working with churches and other religious institutions that serve minority populations to ensure that leaders and congregants are knowledgeable about clinical trial participation.

While Dr. Cohn understands the medical urgency of expanding the pool of clinical trial participants, she wants to ensure that participants make an educated decision about participation. “My goal is for people to make the best decision…while still understanding the risks and benefits,” she said.

The final phase of her current study looks at how leaders of churches and other faith-based institutions in Harlem, New York, decide whether to promote specific research studies to congregants. She and her team are also developing a decision tool to help people make the call.

Dr. Cohn and her collaborators are conducting interviews, focus groups and outreach meetings with Harlem faith leaders, including ministers, pastors, first ladies and imams, as well as congregants. The purpose is to understand the questions, considerations and attitudes of those who are weighing research participation.

As an example, Dr. Cohn described her work with the Abyssinian Baptist Church in Harlem, the historic and influential church that is led by Reverend Dr. Calvin O. Butts III, who also serves as president of SUNY Old Westbury. Dr. Cohn has had a long partnership with the church and has followed its decisions about which clinical trials to promote to its members. Recently, the church’s leaders declined an invitation to participate in research that required wearing a GPS tracking system.

“That has much too high of a risk for the value that might come of it,” Dr. Cohn said, adding, “But they are a very educated church.” She aims to help other churches make similarly wise choices on behalf of their congregants.

This piece appeared in the 2015 issue of Erudition.

About Adelphi: A modern metropolitan university with a personalized approach to higher learning.

Adelphi University is a highly awarded, nationally ranked, powerfully connected doctoral research university offering exceptional liberal arts and sciences programs and professional training with particular strength in its Core Four—Arts and Humanities, STEM and Social Sciences, the Business and Education Professions, and Health and Wellness. Adelphi is dedicated to transforming students’ lives through small classes, hands-on learning and innovative ways to support student success.

Founded in Brooklyn in 1896, Adelphi is Long Island’s oldest private coeducational university. Today Adelphi serves nearly 8,000 students at its beautiful main campus in Garden City, New York—just 23 miles from New York City’s cultural and internship opportunities—and at dynamic learning hubs in Manhattan, the Hudson Valley and Suffolk County, and online.

More than 115,000 Adelphi graduates have gained the skills to thrive professionally as active, caring citizens, making their mark on the University, their communities and the world.

Tagged: Center for Health Innovation, College of Nursing and Public Health, Erudition